friendship

Hello Lover

We lived in San Francisco for almost 8 years and returned to it after 5 months of living in my parents and 3 weeks of living with a friend in New Orleans (our new home). Our stuff was in boxes in three different states, neither of us had jobs yet, and we’re living in this surreal cancer world where life hasn’t been normal for a long time.

Visiting San Francisco in our current situation is like what I envision spending a week with your ex that you were in love with but broke up with because you wanted different things but you haven’t moved on to someone new yet must be like. You look really good San Francisco.

It’s wonderful, sad, and surreal all at the same time. We hung out with our friends, going the places we used to go, and nothing there has really changed. It still fits like a glove and that’s hard and confusing.

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Our welcome committee that spawned the week long teddy bear wars

It was also the perfect chemo vacation. We stayed with friends in a neighborhood that had a lot nearby that we could walk to. This was key because I decided taking Muni (the public transportation system) was a bad idea with my weak immune system since it’s flu season and riding Muni is a like sharing a dirty needle. Because we lived there so long and left this year I didn’t feel like there was anything I had to see so it was ok being really limited (I can’t walk very far either). I already did my farewell to San Francisco tour in March. Our friends and family were also all willing to come to us and keep things low key. We were there for a wedding and it was wonderful to get really dressed up and go to a party where everyone was dressed up after living in PJs and yoga pants for the last 4 months. In a funny turn of events, A. forgot his suit and I forgot my dress. You know, the only two articles of clothing we actually needed to bring. I got to have a dress montage at the apt with two friends lending me an assortment of options.

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A, Mark, me, and Ash: wedding glam.

We got there via Southwest for a couple of reasons. There are direct flights between SF and NOLA through United (that’s for you SF friends and family), but we had left things that wouldn’t fit in our car to come back for and we also knew we might have to leave early because of me so free checked bags and no fees for canceling or changing flights won the game (I’m available for hire Southwest). I didn’t wear a wig because I thought that might get weird with security and also didn’t want it to look all ragged from wearing it on a plane all day so I balded it up with my face mask. They let us pre-board which is pretty sweet since you can choose your seat, it was also necessary because I get tired doing a lot of standing and the find your seat shuffle would have been tough. It was the first time I have ever not been delayed between LA and SF, it was a cancer miracle. We didnt have anyone sit next to us for for the first plane because my face mask, baldness, and sad cancer look I gave everyone walking down the aisle. I eased up after that.

I didn’t know how my second taxol treatment would go and was cautiously hopeful. I made plans, but caveated that they could all fall apart. I also didn’t make other plans because I knew I’d be exhausted and might be sick on top of that. A typical day in SF for me was a plan with someone (like lunch), a few hours of resting, another plan, and then going to bed way before everyone else. All part of my being 65 years old right now. This obviously limited my ability to see people and that was the hardest part.  I also couldn’t do a big meet up because bars aren’t really a great place for me right now and I get too tired to interact with a ton of people.

My big accomplishment was being able to see everyone that I made plans with and do everything I planned. It helped me feel like a person and not just a patient. I also felt good because I paced myself well enough to get through it all. I still had some rough spots, but that’s chemo. Monday I got lunch and went for a little walk in my old hood the Upper Haight with a friend. I had a true Upper Haight experience in buying a $4 cup of coffee and having to avoid poo on the sidewalk every few feet. Stay classy SF. Anyways in this short excursion I plummeted in how I felt, going from fine to exhausted, dizzy, and unpleasant feeling. No rhyme or reason as to why the worst I felt from this treatment was a week from the dose. My tiredness came and went too. One night I’d be up until 11pm and another I’d barely be able to keep my eyes open at 9:45. I fortunately didn’t get any fevers while I was in SF which was my biggest concern. No trips to the emergency room in SF!

One of the best and the hardest times was visiting my old office. I spent around 4 hours at the office just going from aisle to aisle and sitting and talking to people and I still didn’t have enough time. On one hand it felt so good to see everyone and on the other it just wasn’t enough. I wanted more time to spend with my friends and catch up in person on their lives and also just enjoy time together without the pressure of making the most of it. I left when I got exhausted, well maybe a while after I got exhausted, and still wanted more.

I think it will be a long time before a year will pass when A. and I don’t make a trip to SF because of our friends and family there so I just have to pacify myself knowing I’ll be back and next time I’ll be able to do so much more.

We got rained in and had a bonus day in SF. Fortunately our flight was cancelled before we got up so we didn’t have to sit around a crowded airport waiting on delays. We spent the day in the apt with our friends hosting us and it was a much needed rest day for me and bonus time with them. The storm of the century was pretty unimpressive from where we were staying and we never lost power or internet.

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That flower bed is like totally flooded. Storm of the century!

The ride back we had delays from SF and from LA which were pretty lame. Also lame that an airport the size of LAX doesn’t have decent food options. I paid $17 for a sandwich that sucked and a water. I expect a movie with those prices. A. got some guff from the SF Southwest gate attendant about getting pre-boarding for me. She apparently said that we could get on last instead. I kind of wanted to cancer shame/punch her in the face when he told me. And by “kind of”, I mean that I fantasized about it for the rest of the time we waited to board and exercised a lot of restraint especially when she announced that anyone who needed to pre-board should come see her. I’m not wishing that she gets cancer, but I definitely wish something bad happens to her, worse than my usual go-to of a bird pooping on her head. I never said that I’m not vindictive.

I expected to be really sad when we left and feel weird about leaving. I didn’t. I looked forward to coming home to New Orleans and I think that was a really important step in my breakup with San Francisco. SF will always have a place in my heart and have been an important part of my life, but I’m moving on and excited about my future with New Orleans. It’s a new relationship and we have a lot to experience together still, but it feels right and I think it could be the one.

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Looking good San Francisco

 

What Does Taylor Swift Have To Do With Me Having Cancer?

Is a perfectly reasonable question to ask and until today I would have looked at you like you were crazy. Today was one of those one step forward, two steps back kind of days. Or a more accurate and less polite way to put it is, today was one of those days that I got bitch slapped by my cancer and reminded that I’m not in charge most of the time.

As I mentioned before, chemo round 2 has been so much better than chemo round 1. It is still really sucky, but I haven’t felt like I was in hell or lost 14lbs in 5 days so it’s a vast improvement. I just want you lucky non-chemo experiencing people to understand when I say “way better” it’s a really low bar so hold the parade. The main difference is that we got my nausea mostly manageable and I’m taking three different things so I can sleep so I no longer feel like I’m an inmate in Guantanamo (we all know Obama wasn’t going to let me out).

The problem with feeling this much better in comparison is that I stopped putting my cancer first and started thinking I was a normal, somewhat limited, human being again. This was incorrect and as my dear cousin Chris would say, “Rookie Mistake”.

It turns out, even when one is feeling more human and like they can make plans and eat, and be active with their visitors, one still needs to pace themselves and act like they are prone to get sick at any moment. This sounds really lame, but if I had been acting like I’m less than one week into my chemo I probably wouldn’t have gotten super sick. I was already cheating because I went in for fluids and anti-nausea meds at DHMC on Friday. I think I probably would have gotten sick anyway because I was probably due one way or another, but getting really sick when you’ve eaten things you apparently shouldn’t be eating (bye yogurt, it’s been fun), didn’t take an anti-nausea drug because you were ready to be off of them (guess what, you weren’t), and you made plans to go out to lunch and for a long drive (hah), is going to be way worse sick than just normal I had chemo a few days ago and am still sick sick. Or at least I assume so since I didn’t get to experience that one.

The worst part was that I had two amazing wonderful friends that were visiting me that I had to leave to go be sick for like and hour and then come down to tell them I couldn’t hang out. Really really lame. However we did get to hangout most of the morning and last night and I am so very happy I got the time. I wish I had a photo of us for this post, but I thought we’d have plenty of time today. Even though I got bitch slapped by cancer today, I still had a really great time with them and it didn’t ruin it, just made me appreciate it more. I unfortunately don’t have that photo I wanted of all three of us, so I’m posting this in the meantime from 12 years ago when our friendship began.

cute mike and me

Please note that Save the Last Dance is playing behind this prom pic

me and ricky

Early selfies in the bathroom

Thanks guys, it’s been a tough few days and you were rays of sunshine and homemade empanadas.

Ok so back to Taylor Swift. As I mentioned, I was really sick. Like laying on towel (I’m not a heathen) on bathroom floor in misery sick. What gets stuck in my head during this hour+ of misery? “Now I’m laying on the cold hard ground. Ugh! Trouble! Trouble!” Which I then resentfully thought to myself “That bitch doesn’t even know the meaning of trouble. Try cancer.” Sometimes we all need a little bit of a self indulgent moment, and sometimes that moment is hating on Taylor Swift.

Also, fourth musketeer if you’re reading this. It’s been a long time and you were missed.

Learning Hard Lessons

One of my mom’s best friends told me to look for the gifts in this. That can totally piss you off if it’s a bad day, but in actuality it is really a helpful and true thing to say. Getting cancer at 30 turned my life upside down and threw all of my best made plans to the wind, or at least delayed them. Some of them for years to come, some of them for months. This is one of the biggest changes my life has gone through so there has to be things to take away from this, learnings and things that made it better.

One of the major things that I’ve gotten from this is that I’m loved. I don’t have the best self confidence or view of myself and it’s been stunning to me how much of you care. Not only that you care, but you care enough to send me cards, thoughtful care packages, visit, registry items, emails, calls, offers of help, etc.

It’s overwhelming proof that I’m not a loner and that there are a lot of people out there that care about what happens to me. I’ve pretty much been smacked in the face with this fact and I think I needed it. I think my life will be better from it.

Of course there have been some people that I thought I’d hear from and didn’t, but I’m letting that go because people don’t always know how to deal with this and also cancer doesn’t cure things, like issues in friendships or distance that’s grown.

Also how can I dwell when I have a tidal wave of caring and well wishes from more people than I ever would have thought would care? Its humbling and a feeling that I’m being lifted up by a crowd of people, like I’m not as along as I feel sometimes in Vermont, but am supported by a village of people that I’ve gotten to know throughout different periods of my life.

I know that me having cancer can make you feel powerless, you can’t cure me and it can seem like you can’t make it better. You do make it better though. Every note, email, letter, card, call, and visit make it better. You are doing something and it’s really important. I have doctors to fix me (like a lot of them). I love the things I get sent or given that I can’t even imagine needing and then realized I did. Some friends in SF sent me a pirate nightlight that projects stars on the ceiling for about an hour and then automatically shuts off. Sometimes I have trouble at night, it’s easy in the dark to drown in worries and thoughts. Now I have the stars to keep me from drowning in the darkness, but I never would have thought to ask for them. There’s the small teddybear which is the perfect size not to be to large when I’m so fragile in a lot of places making it hard to hold things, but is soft and substantial enough to make me feel better holding on when things hurt. There’s the wonder woman cup and the cup of courage that both remind me to be strong, but were never something I would have thought of. There are so many other things too (like my unicorn bouquet, coloring books, books, CDs, wine glasses, etc) that come from my creative, thoughtful, sweet, and strong friends and family.

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Thank you.

Like A Rolling Stone

We’ve been traveling for 19 days and have 11 more to go in Thailand. Then we’ll have roughly 21 days in SF, Portland, Glacier, Yellowstone, Minneapolis, Chicago, and Toronto before we arrive in Vermont for the summer.
It’s strange after having roots for almost 8 years to no longer have a “home”. We sold all the furniture so we don’t even have a bed that’s ours anymore. It was an uphill battle for the first 4 or so years in San Francisco to build a life for myself and to walk away from it seems a bit mad, but I do so with confidence that I didn’t have before that I can do it and be much better at it this time.
It made our goodbye party bittersweet because as a friend pointed out to me, it was a collection of friends I made soon after arriving to friends I’d made in my last year in SF. A true reflection of a built life.
And now I’m on a ferry in Thailand getting a little teary eyed over it all.
Luckily I have years of practice at the long distance friendship with some of the closest people to my heart so I know my SF life will continue through long distance relationships. It’s not the same, but it’s invaluable. My Dad actually showed me the way through having one best friend in Connecticut and the other in New Jersey. You make it work.
But I have the one constant who was there for the beginning and will be there through each step of new adventure and that’s really how it holds together.